こんにちは、2025/8/22に無事退院しました。
サルベージ手術をうけて12日が経ち、痛み止めも1日1回飲むだけで過ごせるようになりました。
退院予定日の2日前に原因不明の発熱と倦怠感があり1日退院日が伸びましたがそれ以外はすべて順調に回復しています。
ただ、やはり以前とは身体が違うという違和感を感じます。 息切れがするのと空咳が頻繁にでるようになりました。また、長時間座っていると肺〜背中にかけて鈍痛を感じます。 これも徐々に良くなるのでしょうか・・・。
体調異変から診断が出るまで約1ヶ月
2025年1月に癌とわかった後は肺炎を起こしていたため抗生物質を1週間服薬。その後、PET CT、 MRIを受け、その後気管支鏡検査をうけるため2泊3日の入院となりました。気管支鏡検査ですが実は2度受けました。1回目病院で受けたのですが癌細胞は採取できませんでした。病院からここではもう対応できないとのこと、癌専門の大きな病院への紹介状を書いていただき転院となりました。
癌専門センターに転院後に再度気管支鏡検査を受けました。癌センターでは日帰りかつとてもスムーズに検査が行われ、がん細胞も採取でき癌の種類の特定に成功しました。病院によって医療の質や技術にレベルの違いを感じましたので、病院選びは重要だと思いました。
最終的に審査結果が出たのが2/25, 病名：非小細胞肺癌、腺癌、EGFR遺伝子変異、ステージ４と診断を受けました。手術はできないため、化学療法で対応することになりました。使用する薬はオシメルチニブ（通称タグリッソ）です。
診断日から２日後の2/28〜一週間入院しタグリッソの服用が始まりました。 治療を始めなければ余命約６ヶ月と言われたのもこの時期です。
会社は３月から１ヶ月お休みをいただくことになりました。
Hello, I was discharged from the hospital on August 22, 2025. It's been 12 days since I had my salvage surgery, and I'm now able to get by taking pain medication only once a day.
Two day before my scheduled discharge, I had an unexplained fever and felt lethargic, which delayed my discharge by one day. Other than that, my recovery has been smooth.
However, I still feel a sense of unease, as if my body is different from before. I'm experiencing shortness of breath and a frequent dry cough. Also, when I sit for a long time, I feel a dull ache from my lungs to my back. I wonder if these symptoms will gradually improve.
A month from the first symptoms to a diagnosis
It took a month from the onset of my symptoms to get a diagnosis. After finding out I had cancer in January 2025, I took antibiotics for a week to treat pneumonia. I then had a PET CT and an MRI. Following that, I was admitted to the hospital for a 3-day stay to undergo a bronchoscopy. I actually had two bronchoscopies. The first one was at a local hospital, but they weren't able to collect any cancer cells. The hospital told me they couldn't handle my case anymore and wrote a referral letter for me to transfer to a large, specialized cancer hospital.
After transferring to the cancer center, I had another bronchoscopy. This time, the procedure was done as a same-day outpatient visit and was very smooth. They successfully collected cancer cells and were able to identify the type of cancer. This experience made me realize how crucial it is to choose the right hospital, as there can be a big difference in the quality of medical care and technology.
The final diagnosis was made on February 25th: I was diagnosed with non-small cell lung cancer, adenocarcinoma, with an EGFR gene mutation, Stage 4. Since surgery was not an option, the plan was to proceed with chemotherapy. The prescribed drug was Osimertinib (commonly known as Tagrisso).
Two days after the diagnosis, starting on February 28th, I was admitted for a one-week hospital stay to begin taking Tagrisso. It was also around this time that I was told I had about six months to live if I didn't start treatment.
While I took a one-month leave of absence from work starting in March.