ご報告
私は河田哲郎の兄の大輔と申します。
哲郎より依頼を受けて本人のアカウントより投稿しております。
弟の哲郎は10月10日午後6時37分、家族に看取られながら、息を引き取りました。享年48歳。死因はALSによる肺炎でした。 残念でしたが、難病中の難病であるASLからの戦いからやっと解放されたことが、せめてもの慰めです。
哲郎は2010年にALSと診断され、発症時は数年後に必要となる呼吸器をつけずに死ぬ決意をしたものの、その後ただ生きるのではなくALSと戦うことを選びました。 自分では動くことも出来ず、食事も出来ず、呼吸すら出来なくなってからALSの勉強や、一から投資を勉強し、デイトレ－ダーになったり、ウクライナ避難民の子供達に何かしらの笑顔になるようなことがしたいとウクライナ国旗カラーのバレーボールを製作依頼し、ウクライナ大使館を通じ、プレゼントしたりと健常者でも中々できないことをやっていました。
ALS発症時に解決先を探しにイスラエルへの訪問に同行してくれた友人達、ALSアイス・バケツ・チャレンジを自宅の庭で行ってくれた友人達、哲郎が立ち上げた「ALS Friends JAPAN」では毎年、東大阪市ふれあい祭りでブースを出店し、その収益金を京都大学iPS研究所、東京医科大学 神経分子病態学遺伝子治療研究所に寄付をしてくれた友人達、そしてALSになりながらも頑固な哲郎に献身的な介護をしてくれたヘルパー様達。
生前、哲郎並びに私達家族が皆様に大変お世話になりましたことを心から感謝申し上げます。 今後も皆様には、変わらぬご厚情を賜りますようお願い申し上げます。
簡単ではございますが、ご報告とさせていただきます。
I am Daisuke Kawata, the older brother of Tetsuro Kawata.I am posting this from Tetsuro's account at his request.
It is with deep sadness that I announce the passing of my brother, Tetsuro Kawata, who died at 6:37 p.m. on October 10, 2026, at the age of 48, surrounded by his family. The cause of death was pneumonia caused by ALS.
Although we are heartbroken, it brings us solace to know that he has finally been released from his long battle with ALS—one of the most devastating and incurable diseases.
Tetsuro was diagnosed with ALS in 2010. At first, he made the difficult decision not to use a ventilator—which he would need a few years down the line—and to accept his fate. However, he later chose not merely to survive, but to truly fight against ALS.
Even after losing the ability to move, eat, and breathe on his own, he actively studied ALS and taught himself investing from scratch, eventually becoming a day trader. Wanting to bring smiles to displaced Ukrainian children, he also commissioned custom volleyballs in the colors of the Ukrainian flag and had them presented to the children through the Embassy of Ukraine. These were remarkable achievements that even people without disabilities would struggle to accomplish.
We would like to express our heartfelt gratitude to everyone who supported Tetsuro throughout his journey:
- To the friends who accompanied him to Israel in search of treatments when he was first diagnosed.
- To those who took part in the ALS Ice Bucket Challenge in his garden.
- To the friends who supported "ALS Friends JAPAN," the organization Tetsuro founded—setting up a booth every year at the Higashiosaka City Fureai Festival and donating all proceeds to Kyoto University's Center for iPS Cell Research and Application (CiRA) and the Department of Gene Therapy at Tokyo Medical University.
- And to the caregivers who provided such devoted care to Tetsuro, honoring his strong-willed nature until the very end.
During his lifetime, Tetsuro and our family received tremendous support and kindness. We sincerely thank each and every one of you.
We humbly ask for your continued warm support in the days ahead.
Please accept this message as a brief announcement of his passing.
哲郎より依頼を受けて本人のアカウントより投稿しております。
弟の哲郎は10月10日午後6時37分、家族に看取られながら、息を引き取りました。享年48歳。死因はALSによる肺炎でした。 残念でしたが、難病中の難病であるASLからの戦いからやっと解放されたことが、せめてもの慰めです。
哲郎は2010年にALSと診断され、発症時は数年後に必要となる呼吸器をつけずに死ぬ決意をしたものの、その後ただ生きるのではなくALSと戦うことを選びました。 自分では動くことも出来ず、食事も出来ず、呼吸すら出来なくなってからALSの勉強や、一から投資を勉強し、デイトレ－ダーになったり、ウクライナ避難民の子供達に何かしらの笑顔になるようなことがしたいとウクライナ国旗カラーのバレーボールを製作依頼し、ウクライナ大使館を通じ、プレゼントしたりと健常者でも中々できないことをやっていました。
ALS発症時に解決先を探しにイスラエルへの訪問に同行してくれた友人達、ALSアイス・バケツ・チャレンジを自宅の庭で行ってくれた友人達、哲郎が立ち上げた「ALS Friends JAPAN」では毎年、東大阪市ふれあい祭りでブースを出店し、その収益金を京都大学iPS研究所、東京医科大学 神経分子病態学遺伝子治療研究所に寄付をしてくれた友人達、そしてALSになりながらも頑固な哲郎に献身的な介護をしてくれたヘルパー様達。
生前、哲郎並びに私達家族が皆様に大変お世話になりましたことを心から感謝申し上げます。 今後も皆様には、変わらぬご厚情を賜りますようお願い申し上げます。
簡単ではございますが、ご報告とさせていただきます。
I am Daisuke Kawata, the older brother of Tetsuro Kawata.I am posting this from Tetsuro's account at his request.
It is with deep sadness that I announce the passing of my brother, Tetsuro Kawata, who died at 6:37 p.m. on October 10, 2026, at the age of 48, surrounded by his family. The cause of death was pneumonia caused by ALS.
Although we are heartbroken, it brings us solace to know that he has finally been released from his long battle with ALS—one of the most devastating and incurable diseases.
Tetsuro was diagnosed with ALS in 2010. At first, he made the difficult decision not to use a ventilator—which he would need a few years down the line—and to accept his fate. However, he later chose not merely to survive, but to truly fight against ALS.
Even after losing the ability to move, eat, and breathe on his own, he actively studied ALS and taught himself investing from scratch, eventually becoming a day trader. Wanting to bring smiles to displaced Ukrainian children, he also commissioned custom volleyballs in the colors of the Ukrainian flag and had them presented to the children through the Embassy of Ukraine. These were remarkable achievements that even people without disabilities would struggle to accomplish.
We would like to express our heartfelt gratitude to everyone who supported Tetsuro throughout his journey:
- To the friends who accompanied him to Israel in search of treatments when he was first diagnosed.
- To those who took part in the ALS Ice Bucket Challenge in his garden.
- To the friends who supported "ALS Friends JAPAN," the organization Tetsuro founded—setting up a booth every year at the Higashiosaka City Fureai Festival and donating all proceeds to Kyoto University's Center for iPS Cell Research and Application (CiRA) and the Department of Gene Therapy at Tokyo Medical University.
- And to the caregivers who provided such devoted care to Tetsuro, honoring his strong-willed nature until the very end.
During his lifetime, Tetsuro and our family received tremendous support and kindness. We sincerely thank each and every one of you.
We humbly ask for your continued warm support in the days ahead.
Please accept this message as a brief announcement of his passing.
