Please cooperate!
Every May 12th is the world awareness day of Myalgic encephalomyelitis which is also one of my diseases.
... There, I request to everyone
★ Posted by attaching "#mecfs" to the photograph of the awareness color "Blue" of this disease (photograph blue things etc…)
★ And if possible… Please attach the following hashtag
#BluePhotoChallenge
#MyalgicEncephalomyelitis
#Egaonohanabiraatumetai
#MyalgicEncephalomyelitisWorldAwarenessDAYFestivalinGifu
With help from everyone, I want to liven up awareness day even just a little
.. Thank you
【What is myalgic encephalomyelitis? 】
It is a disease which strength-tired feeling of unknown cause continue for more than 6 months, making it difficult to send normal daily life. Approximately 30% of patients are almost bedridden at present.
There are few specialists, it takes to time to diagnose, as a result their patients are serious condition for the most part.
In the latest research, special encephalitis is occurring, abnormality of the immune substance cytokine, etc. are known, but since it is not understood by appearance, it has the problem that it is misunderstood as merely tiredness and laziness, for example. “Myalgic encephalomyelitis World awareness day Festival in Gifu”
Date and time: May 12, 2019 (Sunday) 1:00pm to 7:30pm
Place: Cinex Hall ＊With elevator
(Gifu Takashimaya East Cinex Building B1) + admission free
＊Egaonohanabiraatumetai is patients association of myalgic encephalomyelitis. Their member named patients' environment is ready, want patients to smile.
翻訳者 : リーシャン さん
筋痛性脳脊髄炎 患者会
「笑顔の花びら集めたい」代表
塚本 明里