完全に人違いになってます
おまけに 生姜のチューブを１本食べたからか
ものすごく 変なかんじになってます
明日も歯医者で あさっても 辛い
凄く憂鬱な毎日だ（涙
昨日は 辞めるつもりがなかったのに グルテンフリーが終わってしまった
シュークリームと カップヌードルを食べてしまった（涙
１００日間良く耐えたと思う＾＾
ビデオデッキ買ったのに 箱を開ける気力もない。。。
テレビつけたら 子供に熱湯かける母親の事件？
昨日 海外のCFSを患う娘さんをもつ心優しい母親の
書き込みをみてたので この２人の母親のギャップに驚く
下記の１２歳の少女の母親の書いてる文章ってまるで 詩みたいなんだよね
なんか 岸谷香さんの 愛の戦士（Romantic Warriors)っていう曲みたい＾＾ 子を想う気持ち＾＾
でも 生まれつきCFSの兆候があったってのは
かなり深刻なケースだからね 治って欲しい 。。。
I have begun calling her my little warrior. I tell her she is fighting a big battle,
and she is doing so very bravely.
We have begun singing a little song while we wait for the knotweed to help:
Viruses, viruses....go away.
We don't want you to stay.
I am fighting you away today.
Soon, I will begin to feel okay.
It gets a little giggle anyway and I cherish the giggles and pray for more to come.
She is our only child, and while we are lower middle class,
single income (I need to be home with her and home school her) parents,
we feel we have to do everything we can to try to ensure the best future for her.
She has been very ill for over 2.5 years.
My kiddo has been medically complicated since birth.
We HAVE to try to ensure she can be as independent,
healthy and happy as possible. It is simply our job.
We are probably in a somewhat unique position on this board as parents
of an affected child rather an adult patient.
I am hopeful that this financial outlay will help resolve
some of the issues and we can get her immune system functioning correctly.
If we can do that, in the long run, the theory is it will cost us less money
than just coasting along with frequent infections and long term illness.
The quality of life improvement is worth almost anything.
As her parents, we really want her to feel better.
It is so hard to watch her in this condition.
I just cannot give up and accept that this is as good as it will ever get for her.
I can report that 30-45 minutes after I give her the herbs,
she has what she has always called the "upsets". Her whole demeanor changes,
she becomes very emotional, separation anxiety kicks in heavily,
she cries easily, she becomes even more lethargic, and her vocal tic kicks in.
I attribute this to herxing and two 750mg Japanese knotweed capsules mostly resolve this.
I have begun giving her one knotweed with the herbs,
and another if the herxing is too bad. I look at this as a good thing,
since we have not dealt with herxing previously
on any of my other attempts to resolve her viruses.
My kiddo is verbally delayed, so it is a bit difficult to ascertain some things from her.
She has been sitting on the couch reading books,
playing electronic games, or watching TV (movies) for most of the last two years.
She has been getting up and walking around the house a bit more recently.
She has started doing a few things I have not seen her do in a few years too.
Coloring and cutting out pictures etc.....
She is doing pretty well right now. Not a ton of energy or motivation,
but overall pretty good. We are going to the coast for 5 days soon, so I will see how she does there.
母は強しっていうけど ほんとそうだね～っておもった
子供のためにはなんでもする 時には子供が嫌がっても 辛い治療を
試す必要がある 子供はよくやっている 健康になれればそれで十分幸せ
う～ん 感動した
とともに この母親のやってる治療が まさに自分がこれからやる治療なので
治ってくれなきゃ困るのだ！！と 念じる。。。
なんか この前の麻酔 いつもより 多かった気がする
すんごい長い時間注入してたよ おれが前々回 痛い？ってきかれて 痛いってこたえたからかも。。。
針は細いからそんな痛くないんだけどね～ どっちかっていうと麻酔の副作用のほうが痛いよｗ