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Zhang Xiaoying

December 2, Fuzhou, Huang Jianfeng wanted to speak with his family, but it is not always possible to sound. Lu Cheng Photo

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Faced with high costs, and son Huang Jianfeng eyes revealed desire to survive, Fuzhou woman and her husband Zhang Xiaoying Huangfu Sen in a forthcoming demolition of the hospitals, the lease of the breathing machine and other equipment, a self-built intensive care unit ( ICU), the son of the family 24 hours care. Last night, just to the child's head and body wash Zhang Xiaoying,moncler milano, he told reporters today his son is expected to be back to the hospital for treatment. Recalling the sad experience of more than a year, Zhang Xiaoying said she tears have dried. Our reporter Yang Huayun

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Zhang Xiaoying

Fuzhou 14-year-old mother of Huang Jianfeng, because Huang Jianfeng diagnosed chordoma, can not afford the high cost, and her husband self ICU

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Parents self ICU nursing sick children

Last year, the 14-year-old Huang Jianfeng Fuzhou,rayban lunette de vue, was diagnosed with chordoma. October of this year, Huang Jianfeng four hospitalized, spent all the family savings. Since then, Huang Jianfeng due to disease progression stay ICU,chaussures converse, 37 天 spent more than 100,000 yuan. A few days ago,gucci occhiali da sole, we can not afford the high cost of Huangfu Sen and his wife Zhang Xiaoying, to take back his son. They get ready sphygmomanometer and other equipment, pull the wire, in the largest urban redevelopment project in Fuzhou Wangzhuang Village, a relocation of the clinic yet, the self-built & ldquo; ICU & rdquo ;.

According to doctors, chordoma is locally invasive or malignant. Involving the nervous system more, if cleared completely,boss, it will damage the nervous system, may be paralyzed after recovery. Such as removal is not complete, will lead to tumor relapse becomes large.

The surge in the cost of the child deteriorated

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Beijing News: Now how about children

Zhang Xiaoying: the state is very good, he was paralyzed from the neck the whole, will move his neck, thinking properly. Now all walks of life in donations to us two days to live to the hospital, after all, at home, we are all amateurs, nursing well, equipment is not good. Home is too dangerous, we live in fear every day.

Beijing News: When found sick

Zhang Xiaoying: the end of July last year found 3 August surgery, surgery six and a half hours. He was very strong, a lot of people do not wake up after the surgery, he eyes still wide open, and asked him questions, he knows it.

Beijing News: It is said that children begin to recover well.

Zhang Xiaoying: He recovered well, and soon you can walk, also went to junior high school lesson on one week. Later, due to academic pressure, no go. This year the review found that the tumor a little longer, the doctor said surgery is not frequently recommended chemotherapy.

Beijing News: Then the situation deteriorated

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Zhang Xiaoying: until the end of August this year,louboutin pigalle, he came good, had planned to let him return to school, the results of his left foot appeared no effort situation, slowly will not go (way) up. In general wards lived eight days, after exacerbations transferred to intensive care. Until November 21, we really can not afford to consume. Ten thousand dollars does not take four days, and had come up with this approach (self ICU).

Beijing News: Your income can not afford such a large expenditure

Zhang Xiaoying: we are both working in the supermarket, a month will add up to more than 2,000 pieces, not his son one day in intensive care consumption.

Lease purchase of equipment self ICU

Beijing News: can not afford, you have the idea of self-ICU

Zhang Xiaoying: We have long wanted him back, but has no house. After the demolition of the village we started renting, here are taboo, people are not taken seriously ill people at home, the landlord does not agree,abercrombie roma, we will not do that. Later, someone told us, you can find a house in the village, came to live very happy.

Beijing News: Some people tell you what self ICU devices

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Zhang Xiaoying: The doctors told us that we must have a breathing machine,hogan uomo, suction machine these.

Beijing News: The media called this ward self ICU.

Zhang Xiaoying: very simple,bvlgari bracciali, our ICU is to add double quotation marks, and only breathing machine, suction machine, oxygen machines and oxygen tanks, air cushion. The cheapest ventilator must 30008, from the manufacturers can not afford to rent a month over 3000. In fact, this is very dangerous, the doctor said I like this ventilator can not 24 hours of continuous use, we have spent more than 20 days.

Oxygen tank filling gas is necessary once 30, only with thirty-four hours. I can not afford to buy a one oxygen machine. Buy, manufacturers lend us one, two used together enough to use, there is a power failure backup oxygen tank.

Anyway, yes, expensive equipment can not afford to rent, cheaper to buy.

Beijing News: self ICU also prepared to do what

Zhang Xiaoying: due to the demolition, are garbage. The house clean, this year on November 19 we bought a ventilator these equipment manufacturers who also pulled intensive care for a few hours to go to trial, the 20th factory letting people come here to teach us, are somehow only then him back.

Doctors advise danger discharge Shizhuwunai

Beijing News: The doctor know you want to go home their own care, what reaction

Zhang Xiaoying: The doctor also spoke very dangerous, but we can not afford the doctor had no choice,cinture ermenegildo zegna, we do not have the conditions for exemption for medical expenses, they had agreed to take us back.

Beijing News: This is not only not help, but there are risks.

Zhang Xiaoying: the child mind is very clear, and he looks very handsome, has been raised to be so big, we are also middle-aged, and can not give up, there is one percent hope, we have to do 99% of the effort.

Beijing News: You can not, after all health professionals, may have difficulty using the device

Zhang Xiaoying: We will not use. Please just started a dozen years in the hospital for care workers, we told her to school, people rent and sell equipment, we also teach us.

Care workers 100 yuan a day. Later, we could not afford, and after a two weeks all of its own doing.

Beijing News: how to do in case of danger

Zhang Xiaoying: We are also very worried, afraid to sleep at night, 24 hours staring. My husband and I, in turn take care of her mother. My husband has to leave,ceinture gucci, I have to go to work, can not two people leave, or else there will be no cost of living.

The night was cold, my body can not stand all night guarding him. 21 back, 22, met in the morning outage, respiration confidential electricity, we had to use oxygen squeeze ball, what are afraid to loose, loose (son) no breathing. Fortunately, the afternoon call.

After the children came back miraculously speak

Beijing News: how and son exchange

Zhang Xiaoying: The doctor said the tracheotomy is impossible to speak of, he more than 30 days in the ICU, brought back more than a week did not speak. We are all beginning to draw a portrait, pointing to the site and asked him where the pain, if refers to, and he stretched out his tongue.

Beijing News: has this exchange

Zhang Xiaoying: the day, the reporter to our house, he suddenly spoke, he could speak, we care more convenient. He will speak, we are very pleased, a miracle happened, we care more confidence in him. During this time, although we have no hospital care and thoughtful, no hospital equipment advanced, but their loved ones 24 hours in the side, his color is good.

Beijing News: While talking, but such care is still very dangerous.

Zhang Xiaoying: He will speak much better. We told him to go to the hospital tomorrow, and he started to cry,moncler bambino, we have been comforted him, and we now have money, you can continue to treat, let him have confidence. He wanted at home,hogan interactive outlet, but we are worried about him every day.

Beijing News: how to give children medicine

Zhang Xiaoying: to the hospital to seek medical prescriptions from the pharmacy, not buying them out. Tomorrow he might be admitted to the hospital, the hospital will not help his shampoo bath, we just washed his head, and we had three sweating. His right foot has been sore, wash your hair to hold the neck attached to the ventilator tube, but also specialized leaning.

Beijing News: he is willing to stay at home or go to the hospital

Zhang Xiaoying: at home, because their relatives were with him, every day, take care of him. In the ICU, daily 15:40 to 4:00 you can visit, you can only go in one person, hurry. He was bitter at the hospital, the patient may be more nurses to take care of, we went to see, he often saliva flow to the neck below. He often tears, miss home, I did not say every time in hospital I want to go home sick. Every time I come out from the ward, in the bus more than one hour, we must cry, the car people will look at me strangely, I could not.

Self ICU without removal of spare

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Beijing News: After the difficulties, there is no thought of such an application aid

Zhang Xiaoying: We are here after the demolition, neighbors were scattered. Bureau of Civil Affairs also think about the past, but I think we are all civilians, did not come across this kind of thing, do not know that they will not talk to us.

Beijing News: do children have health insurance

Zhang Xiaoying: He participated in the student health insurance, 40 per year. But the hospital three times this year, can only be reimbursed more than thirty thousand, a hundred thousand dollars this latest treatment all at their own expense. Now it is a bear, like his disease, the better the economy is difficult to bear, let alone our revenue this bad.

Beijing News: It was not to find family and friends help

Zhang Xiaoying: I am very vulnerable. I did not tell my colleagues, she did not tell her family. Dare not speak. If you say, they'll often ask me, I would cry. My tears are drained, I do not know how this year is over.

Beijing News: Now donations can ease your economic problems, the next step how to

Zhang Xiaoying: There is now a little money, temporarily let his son admitted to the hospital, and so little good physique, may be surgery.

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Beijing News: self-built ICU ward how to do

Zhang Xiaoying: have not thought about how to do, first admitted to the hospital,lacoste lunette de soleil, we are confident that he will get better. But this can not be removed, perhaps even with the ventilator rent very expensive, to see whether the first retreat, in case also brought back, then rent.

Beijing News: The son's illness, family is very optimistic

Zhang Xiaoying: My son is a miracle could speak, he could stay in the intensive ward more than 30 days, the doctor said that is a miracle. He is very tenacious vitality, we are confident, never despaired.

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