* I would be happy if you could share this blog with many people.
“You and I,
and Fibromyalgia”
So many people have read my previous post.
Thank you very much.
It was shared many times and featured on TV.
Now I feel I have connected with many more sick and suffering people.
THANK YOU SO MUCH!
I usually do not write much about my body. Perhaps, those who read my blog or SNS understand.
(*I am the representative of of the patients group of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome called “Egao no Hanabira Atsumetai- I want to collect petals of smiling face,” and am commenting on the website as well.)
Being like this, I am still able to do my work of modeling and media work… for the time being.
Therefore, I may be acting a little cheekily…
I always think, "I don’t want to worry people.” I appreciate that you care about me, and I feel sorry for your concern at the same time.
Here is another reason why I have not talked about my sickness.
That is……
I AM WHO I AM,
with or without my sickness! Lol!
What I mean is…
Even after I became sick, I am still Akari Tsukamoto! The sickness hasn’t changed me as a person.
For me, my illness is not my personality. It’s like a "fellow soldier" or a “bosom friend" who became a roommate with me, not quite welcomed.
Illness= Akari Tsukamoto is not true.
AKARI TSUKAMOTO= AKARI TSUKAMOTO!!
This roommate likes me so much that she doesn’t let me go. Lol!
Because we have lived together for 12 years, it feels like we have come to love each other in the last few years. Will we become "lovers" if we both feel the same way? Ha-ha, no way. I will kick her out one day!!
I have tried to be just myself when communicating with you and everybody.
However, since Lady Gaga has the same condition of "Fibromyalgia Syndrome," which is one of my diseases, and has attracted attention worldwide, I thought "Now is the time to tell the reality of me as a patient!"
↑I go to the pain clinic 2-3 times a week.
The patient's daily life is REALLY PAINFUL, and it’s hard to find right words to express it.
I am always like this at home.
(My mother was filming for a record.)
So, this time (in my last post) I wrote my true feelings…
The following are the expressions of pain by other patients.
Please imagine…
"As painful as gunpowder exploding in my body,"
"It feels like my body is getting tightened with a vise,"
"Stings by gimlet," or
"Glass fragments are flushing through my body."
This lasts 24/7 in the whole body.
One of the symptoms of Fibromyalgia is often said to be "depression." Don’t you think it’s natural that some patients suffer from depression if such a condition lasts 24/7?
I believe that I am not suffering from depression thanks to the understanding of the people around me and the pain control at the clinic.
I may be lucky in a way.
It is such a harsh disease.
This disease cannot be found in screening of today’s medicine and patients often have to deal with it alone because it is considered a mental problem.
Diseases of unknown causes have often been sorted as mental problems, but people have discovered causes for many such diseases as medicine progresses.
I strongly believe that this disease, too, will be another one to be determined.
This disease was not well known among others until recently, but it is now acknowledged all over the world thanks to Lady Gaga.
This is why I want you to know "the truth" about this disease and I hope you will understand the feelings of patients.
I am doing various activities, and thankfully there are many followers to give me encouraging messages on SNS.
However, there are patients who are alone and fighting against their condition.
I'm seriously aware that it is really cheeky...
But I would like you to think about all the patients as a whole.
What I mean by "understanding the feelings of patients" is "understanding the disease correctly," and "believing what the patient is telling you.”
(You may not be able to believe just anybody, but please believe ones who are special to you.)
If you think “I want to learn Fibromyalgia,” please see here.
◆ “Fibromyalgia" is explained here by Dr. Mito Matsumoto, who diagnosed my "Fibromyalgia" and "Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome"
→ http://gooday.nikkei.co.jp/
I truly hope that you can have a time to smile even if you are suffering hard days and fighting against loneliness.
* I would be happy if you could share this blog with many people.
Akari Tsukamoto