CFIDS & FIBROMYALGIA Self-Help から抜粋引用。
As long-term illnesses, CFS and fibromyalgia are usually not resolved, but have to be managed.
With short-term illnesses, you often can rely on a doctor to provide a solution or the illness resolves itself. But CFS and fibromyalgia are different. There is no medical cure for either one.
With long-term conditions, more responsibility falls on the shoulders of patients, as day-to-day managers of their illness. You know your situation better than anyone else, because you live with it on a day to day basis.
Your decisions and lifestyle will go a long way to determining your quality of life with long-term illness.
The good news is that there is much that patients can do to improve through their own efforts.
Self-management is not a cure for Chronic Fatigue Syndrome or fibromyalgia, and it is no magic bullet. It's a way of life, not a one-time treatment. Self-management requires patience and persistence.
The Six Challenges of Long-Term Illness
1 Becoming a Self-Manager
whether or not you want the role, you are the day-to-day manager of your condition.
2 Managing Symptoms（症状を管理する）
Most patients respond by using a variety of strategies, which may include medications, alternative treatments and lifestyle changes.
3 Controlling Stress
First, being chronically ill adds new stresses to the challenges of everyday life. ・・・・・
Second, CFS and fibromyalgia are very stress-sensitive illnesses.
4 Managing Emotions
Strong emotions like fear, anger, grief and depression are common reactions to chronic illness. ・・・・・
Unfortunately, CFS and fibromyalgia seem to make emotional reactions even stronger than before and harder to control.
5 Building Support
The unpredictability of symptoms and of emotions makes daily life difficult for everyone. Family members and friends may take on new, additional responsibilities while suffering losses themselves.
6 Finding Meaning
Chronic illness brings many serious losses, including the loss of familiar roles, loss of income and loss of control over our bodies. ・・・・・
Life with long-term illness can be a spiritual journey.
Illness provides an opportunity to reevaluate your life and recast it in a new way. You may not be able to restore your old life or live the life you had planned, but you can create a different kind of life than you had before becoming ill.
「努力 ・ 忍耐 ・ 持続が必要」 と、覚悟すること。